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Ireland · Question · written

PQ 1032

1032. Deputy Naoise Ó Muirí asked the Minister for Health if she will intervene to ensure that the HSE prioritises the conclusion of reimbursement negotiations for skyclarys, given that it is currently the only available treatment for Friedreich’s ataxia and is identified as addressing an unmet need under the National Rare Disease Strategy 2025–2030; and if she will make a statement on the matter. [22393/26]

askedIreland· Dáil Éireann· EN

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24 March 2026

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24 March 2026

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1032. Deputy Naoise Ó Muirí asked the Minister for Health if she will intervene to ensure that the HSE prioritises the conclusion of reimbursement negotiations for skyclarys, given that it is currently the only available treatment for Friedreich’s ataxia and is identified as addressing an unmet need under the National Rare Disease Strategy 2025–2030; and if she will make a statement on the matter. [22393/26]

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