1144. Deputy Arthur Spring asked the Minister for Health the progress that has been made on a specific national approach to improve the health and well-being of persons with rare diseases, as recommended by the European Council action group in the field of rare diseases; the current status of a national rare disease strategy for the State in view of the number of persons estimated to suffer from a rare disease in this country; and if he will make a statement on the matter. [48354/12]

Summary

1144. Deputy Arthur Spring asked the Minister for Health the progress that has been made on a specific national approach to improve the health and well-being of persons with rare diseases, as recommended by the European Council action group in the field of rare diseases; the current status of a national rare disease strategy for the State in view of the number of persons estimated to suffer from a rare disease in this country; and if he will make a statement on the matter. [48354/12]

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• Rare Diseases Strategy Publication

  xml · EN · 6 November 2012

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