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Ireland · Question · written

PQ 1144

1144. Deputy David Cullinane asked the Minister for Health when screening for spinal muscular atrophy, a rare genetic condition affecting approximately six babies born in Ireland each year, will be included in the national newborn bloodspot screening programme; if SMA screening will be implemented before the end of March 2026, as cited by a leading paediatric clinician in recent media coverage; the preparations currently underway to ensure this timeline is met, given that more than two years have elapsed since the decision was taken to include SMA in the heelprick test; and if she will make a statement on the matter. [12188/26]

askedIreland· Dáil Éireann· EN

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17 February 2026

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17 February 2026

Summary

1144. Deputy David Cullinane asked the Minister for Health when screening for spinal muscular atrophy, a rare genetic condition affecting approximately six babies born in Ireland each year, will be included in the national newborn bloodspot screening programme; if SMA screening will be implemented before the end of March 2026, as cited by a leading paediatric clinician in recent media coverage; the preparations currently underway to ensure this timeline is met, given that more than two years have elapsed since the decision was taken to include SMA in the heelprick test; and if she will make a statement on the matter. [12188/26]

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