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Ireland · Question · written

PQ 1185

1185. Deputy Martin Daly asked the Minister for Health her views on whether the ongoing delay in concluding reimbursement negotiations for skyclarys for patients with Friedreich’s ataxia is consistent with the commitment to “equitable access” set out in the recently launched National Rare Disease Strategy 2025–2030; and if she will make a statement on the matter. [30202/26]

askedIreland· Dáil Éireann· EN

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28 April 2026

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28 April 2026

Summary

1185. Deputy Martin Daly asked the Minister for Health her views on whether the ongoing delay in concluding reimbursement negotiations for skyclarys for patients with Friedreich’s ataxia is consistent with the commitment to “equitable access” set out in the recently launched National Rare Disease Strategy 2025–2030; and if she will make a statement on the matter. [30202/26]

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