1642. Deputy Barry Heneghan asked the Minister for Health if she will ensure that any forthcoming review of the long-term illness scheme will explicitly address the equity gap for patients with lifelong chronic or rare conditions who face substantial out-of-pocket costs despite not qualifying for the drugs payment scheme or a medical card; if she will acknowledge that these fallback mechanisms are income-restricted and do not guarantee cost-free access to essential medication; if she will outline how her Department intends to align national supports with the goals of the 2025 World Health Assembly Resolution on Rare Diseases; and if she will make a statement on the matter. [30730/25]

Summary

1642. Deputy Barry Heneghan asked the Minister for Health if she will ensure that any forthcoming review of the long-term illness scheme will explicitly address the equity gap for patients with lifelong chronic or rare conditions who face substantial out-of-pocket costs despite not qualifying for the drugs payment scheme or a medical card; if she will acknowledge that these fallback mechanisms are income-restricted and do not guarantee cost-free access to essential medication; if she will outline how her Department intends to align national supports with the goals of the 2025 World Health Assembly Resolution on Rare Diseases; and if she will make a statement on the matter. [30730/25]

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