PQ 168
168. Deputy Derek Keating asked the Minister for Health in view of the fact that the Health Service Executive has now opened the National Rare Disease Office, the scope of the conditions that will be dealt with there; if a person (details supplied) in County Dublin who has the condition Alkaptonuria, which is extremely rare and of which this person is one of only two sufferers here, will have her condition managed here rather than having to travel to Liverpool in England for treatment; and if he will make a statement on the matter. [24087/15]
Introduced
17 June 2015
Last action
—
Status
written
Sponsors
—
Subjects
Discovery layer
Source updated
17 June 2015
Summary
168. Deputy Derek Keating asked the Minister for Health in view of the fact that the Health Service Executive has now opened the National Rare Disease Office, the scope of the conditions that will be dealt with there; if a person (details supplied) in County Dublin who has the condition Alkaptonuria, which is extremely rare and of which this person is one of only two sufferers here, will have her condition managed here rather than having to travel to Liverpool in England for treatment; and if he will make a statement on the matter. [24087/15]
This text is taken from the official record. PoliticalRepo does not editorialize.
Timeline
No timeline events have been ingested for this record yet.
Votes
No vote records are attached yet.
Versions
No version snapshots stored. Document URLs remain at the source.
Documents
1 official file
Rare Diseases
Rare Diseases
xml · EN · 17 June 2015
Sponsors
No sponsors or actors listed by the source.
Related records
No cross-record relationships stored yet.
Sources
PoliticalRepo is an index and interpretation layer, not the authoritative legal source.
- Official source: https://www.oireachtas.ie/en/debates/question/2015-06-17/168/
- Open data entity: https://data.oireachtas.ie/ie/oireachtas/question/2015-06-17/pq_168