1744. Deputy Rose Conway-Walsh asked the Minister for Health the specific steps being taken to ensure the HSE recognises the time-critical nature of Friedreich’s Ataxia during the current price negotiations for Skyclarys; how the commitments in the National Rare Disease Strategy 2025–2030 and the 2026 IPHA Framework Agreement are being applied to this case to prevent further delay for those with a Friedreich’s Ataxia diagnosis; and if she will make a statement on the matter. [18723/26]

Summary

1744. Deputy Rose Conway-Walsh asked the Minister for Health the specific steps being taken to ensure the HSE recognises the time-critical nature of Friedreich’s Ataxia during the current price negotiations for Skyclarys; how the commitments in the National Rare Disease Strategy 2025–2030 and the 2026 IPHA Framework Agreement are being applied to this case to prevent further delay for those with a Friedreich’s Ataxia diagnosis; and if she will make a statement on the matter. [18723/26]

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