1936. Deputy Robert Troy asked the Minister for Health if the commitments in the National Rare Disease Strategy 2025-2030 and the 2026 IPHA framework agreement, which aims for a 180 day decision timeline, are being applied in price negotiations for Skyclarys in the treatment of Freidreich’s ataxia. [19640/26]

Summary

1936. Deputy Robert Troy asked the Minister for Health if the commitments in the National Rare Disease Strategy 2025-2030 and the 2026 IPHA framework agreement, which aims for a 180 day decision timeline, are being applied in price negotiations for Skyclarys in the treatment of Freidreich’s ataxia. [19640/26]

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• Medicinal Products

  xml · EN · 18 March 2026

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