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Ireland · Question · written

PQ 2066

2066. Deputy Carol Nolan asked the Minister for Health if she will intervene to ensure that the HSE prioritises a conclusion to the Skyclarys reimbursement negotiations, given that it is the only available treatment for Friedreich's ataxia disease and represents a clear unmet need under the National Rare Disease Strategy 2025-2030; if she believes the current delay in concluding negotiations contravenes commitments regarding "equitable access" promised in the newly launched National Rare Disease Strategy 2025-2030; and if she will make a statement on the matter. [20128/26]

askedIreland· Dáil Éireann· EN

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18 March 2026

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18 March 2026

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2066. Deputy Carol Nolan asked the Minister for Health if she will intervene to ensure that the HSE prioritises a conclusion to the Skyclarys reimbursement negotiations, given that it is the only available treatment for Friedreich's ataxia disease and represents a clear unmet need under the National Rare Disease Strategy 2025-2030; if she believes the current delay in concluding negotiations contravenes commitments regarding "equitable access" promised in the newly launched National Rare Disease Strategy 2025-2030; and if she will make a statement on the matter. [20128/26]

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