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Ireland · Question · written

PQ 2074

2074. Deputy Claire Kerrane asked the Minister for Health the commitments outlined in the National Rare Disease Strategy 2025-2030, and the 2026 IPHA Framework Agreement which aims for a 180-day decision timeline being applied in the case of ensuring Friedreichs Ataxia patients in Ireland can access Skyclarys; and to prevent further delays in addressing this clear unmet need; and if she will make a statement on the matter. [20159/26]

askedIreland· Dáil Éireann· EN

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18 March 2026

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18 March 2026

Summary

2074. Deputy Claire Kerrane asked the Minister for Health the commitments outlined in the National Rare Disease Strategy 2025-2030, and the 2026 IPHA Framework Agreement which aims for a 180-day decision timeline being applied in the case of ensuring Friedreichs Ataxia patients in Ireland can access Skyclarys; and to prevent further delays in addressing this clear unmet need; and if she will make a statement on the matter. [20159/26]

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