PQ 2179
2179. Deputy Erin McGreehan asked the Minister for Health the way in which the 180 day decision timeline set out in the 2026 IPHA Framework Agreement is being implemented in practice for rare disease medicines; and the reason this timeline has not been met in the case of skyclarys for Friedreich's Ataxia patients. [20490/26]
Introduced
18 March 2026
Last action
—
Status
written
Sponsors
—
Subjects
Discovery layer
Source updated
18 March 2026
Summary
2179. Deputy Erin McGreehan asked the Minister for Health the way in which the 180 day decision timeline set out in the 2026 IPHA Framework Agreement is being implemented in practice for rare disease medicines; and the reason this timeline has not been met in the case of skyclarys for Friedreich's Ataxia patients. [20490/26]
This text is taken from the official record. PoliticalRepo does not editorialize.
Timeline
No timeline events have been ingested for this record yet.
Votes
No vote records are attached yet.
Versions
No version snapshots stored. Document URLs remain at the source.
Documents
1 official file
Medicinal Products
Medicinal Products
xml · EN · 18 March 2026
Sponsors
No sponsors or actors listed by the source.
Related records
No cross-record relationships stored yet.
Sources
PoliticalRepo is an index and interpretation layer, not the authoritative legal source.
- Official source: https://www.oireachtas.ie/en/debates/question/2026-03-18/2179/
- Open data entity: https://data.oireachtas.ie/ie/oireachtas/question/2026-03-18/pq_2179