2219. Deputy Niall Collins asked the Minister for Health if she will ensure that the HSE prioritises a conclusion to the Skyclarys reimbursement negotiations, given that it is the only available treatment for a progressive disease Friedreich's Ataxia (FA), which currently can be classed as having an ‘unmet need’, as outlined in the National Rare Disease Strategy 2025 – 2030; whether she believes the current delay aligns with the ‘equitable access’ promised in the newly launched National Rare Disease Strategy 2025-2030; and if she will make a statement on the matter. [20794/26]

Summary

2219. Deputy Niall Collins asked the Minister for Health if she will ensure that the HSE prioritises a conclusion to the Skyclarys reimbursement negotiations, given that it is the only available treatment for a progressive disease Friedreich's Ataxia (FA), which currently can be classed as having an ‘unmet need’, as outlined in the National Rare Disease Strategy 2025 – 2030; whether she believes the current delay aligns with the ‘equitable access’ promised in the newly launched National Rare Disease Strategy 2025-2030; and if she will make a statement on the matter. [20794/26]

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