223. Deputy Barry Heneghan asked the Minister for Health if she will review the current HSE criteria for access to approved treatments for spinal muscular atrophy, particularly in relation to the exclusion of approximately 20 adult patients who were over 18 at the time of initial approval; if she will engage with stakeholders, including two organisations (details supplied), to explore a fairer, needs-based approach; and if she will make a statement on the matter. [34856/25]

Summary

223. Deputy Barry Heneghan asked the Minister for Health if she will review the current HSE criteria for access to approved treatments for spinal muscular atrophy, particularly in relation to the exclusion of approximately 20 adult patients who were over 18 at the time of initial approval; if she will engage with stakeholders, including two organisations (details supplied), to explore a fairer, needs-based approach; and if she will make a statement on the matter. [34856/25]

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• Healthcare Policy

  xml · EN · 25 June 2025

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