2255. Deputy Pádraig O'Sullivan asked the Minister for Health if she is aware that according to a survey published by an organisation (details supplied) in May 2026, only 27% of orphan medicines for rare diseases approved between 2021 and 2024 were available to patients in Ireland as of January 2026, compared to an EU average of 43%; the steps being taken to improve access to orphan medicines for patients with rare diseases; and if she will make a statement on the matter. [43427/26]

Summary

2255. Deputy Pádraig O'Sullivan asked the Minister for Health if she is aware that according to a survey published by an organisation (details supplied) in May 2026, only 27% of orphan medicines for rare diseases approved between 2021 and 2024 were available to patients in Ireland as of January 2026, compared to an EU average of 43%; the steps being taken to improve access to orphan medicines for patients with rare diseases; and if she will make a statement on the matter. [43427/26]

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• Medicinal Products

  xml · EN · 9 June 2026

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