250. Deputy Róisín Shortall asked the Minister for Health the progress that has been made by the National Clinical Programme for Neurology and the HSE Scheduled Care Transformation Programme throughout 2021 and 2022 to develop an integrated cross discipline pathway for Huntington’s disease, considering the need for an integrated cross discipline service, which will take responsibility for the coordination of care following a Huntington’s disease diagnosis; the supports that will be made available to families of persons who receive a positive predictive test result; his plans to include the experience and voice of families affected by Huntington’s disease in the development of the integrated pathway; and if he will make a statement on the matter. [22537/22]

Summary

250. Deputy Róisín Shortall asked the Minister for Health the progress that has been made by the National Clinical Programme for Neurology and the HSE Scheduled Care Transformation Programme throughout 2021 and 2022 to develop an integrated cross discipline pathway for Huntington’s disease, considering the need for an integrated cross discipline service, which will take responsibility for the coordination of care following a Huntington’s disease diagnosis; the supports that will be made available to families of persons who receive a positive predictive test result; his plans to include the experience and voice of families affected by Huntington’s disease in the development of the integrated pathway; and if he will make a statement on the matter. [22537/22]

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