254. Deputy Lisa Chambers asked the Minister for Health the mechanism in place to facilitate patient engagement in order that the views of spinal muscular atrophy, SMA, sufferers and their families can be factored into a decision arrived at in view of the fact that the technical review committee on rare diseases comprises patient representatives also. [44420/18]

Summary

254. Deputy Lisa Chambers asked the Minister for Health the mechanism in place to facilitate patient engagement in order that the views of spinal muscular atrophy, SMA, sufferers and their families can be factored into a decision arrived at in view of the fact that the technical review committee on rare diseases comprises patient representatives also. [44420/18]

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• Rare Diseases

  xml · EN · 25 October 2018

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