309. Deputy Emer Currie asked the Minister for Health to provide an update on the implementation of the first phase of the national test directory for rare diseases, which was launched in January 2025; whether the directory reflects the priority rare conditions identified by an organisation (details supplied) and clinical experts in the field; to outline the extent of its current usage by clinicians and services; which of the gene panels included are specifically for rare diseases; and if she will make a statement on the matter. [30877/25]

Summary

309. Deputy Emer Currie asked the Minister for Health to provide an update on the implementation of the first phase of the national test directory for rare diseases, which was launched in January 2025; whether the directory reflects the priority rare conditions identified by an organisation (details supplied) and clinical experts in the field; to outline the extent of its current usage by clinicians and services; which of the gene panels included are specifically for rare diseases; and if she will make a statement on the matter. [30877/25]

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• Departmental Programmes

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