3341. Deputy Pa Daly asked the Minister for Health if her attention has been drawn to concerns of the HSE’s decision not to approve the Friedreich’s ataxia drug for reimbursement; if she has met with the HSE to discuss the matter; if so, to report on those meetings and the dates on which they took place (details supplied); if her attention has been drawn to that it is publicly funded and / or accessible in other European countries having been approved since February 2024; if she is satisfied that this is not the case in Ireland; and if she will make a statement on the matter. [61173/26]

Summary

3341. Deputy Pa Daly asked the Minister for Health if her attention has been drawn to concerns of the HSE’s decision not to approve the Friedreich’s ataxia drug for reimbursement; if she has met with the HSE to discuss the matter; if so, to report on those meetings and the dates on which they took place (details supplied); if her attention has been drawn to that it is publicly funded and / or accessible in other European countries having been approved since February 2024; if she is satisfied that this is not the case in Ireland; and if she will make a statement on the matter. [61173/26]

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

1. 7 September 2026

   Medicinal Products

   3341. Deputy Pa Daly asked the Minister for Health if her attention has been drawn to concerns of the HSE’s decision not to approve the Friedreich’s ataxia drug for reimbursement; if she has met with the HSE to discuss the matter; if so, to report on those meetings and the dates on which they took place (details supplied); if her attention has been drawn to that it is publicly funded and / or accessible in other European countries having been approved since February 2024; if she is satisfied that this is not the case in Ireland; and if she will make a statement on the matter. [61173/26]

   Source: written

Votes

No vote records are attached yet.

Versions

No version snapshots stored. Document URLs remain at the source.

Documents

1 official file

• Medicinal Products

  xml · EN · 7 September 2026

  ViewDownloadOpen at official source

Sponsors

• Pa Daly · Asking member
• Health · Health · Addressed to

Related records

No cross-record relationships stored yet.