3358. Deputy Robert O'Donoghue asked the Minister for Health if she will intervene to ensure that the HSE urgently concludes reimbursement negotiations for skyclarys given that it is currently the only available treatment for Friedreich’s ataxia and that the condition may be considered an unmet need under the National Rare Disease Strategy 2025–2030; and if she will make a statement on the matter. [27037/26]

Summary

3358. Deputy Robert O'Donoghue asked the Minister for Health if she will intervene to ensure that the HSE urgently concludes reimbursement negotiations for skyclarys given that it is currently the only available treatment for Friedreich’s ataxia and that the condition may be considered an unmet need under the National Rare Disease Strategy 2025–2030; and if she will make a statement on the matter. [27037/26]

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