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Ireland · Question · written

PQ 368

368. Deputy Máire Devine asked the Minister for Health how the commitments in the National Rare Disease Strategy 2025-2030 and the 2026 IPHA Framework Agreement, particularly the 180-day decision timeline, are being applied to the case of patients with Friedrich's Ataxia to prevent further delay in addressing a clear unmet need for treatment and reimbursement. [22736/26]

askedIreland· Dáil Éireann· EN

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25 March 2026

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25 March 2026

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368. Deputy Máire Devine asked the Minister for Health how the commitments in the National Rare Disease Strategy 2025-2030 and the 2026 IPHA Framework Agreement, particularly the 180-day decision timeline, are being applied to the case of patients with Friedrich's Ataxia to prevent further delay in addressing a clear unmet need for treatment and reimbursement. [22736/26]

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