PQ 368
368. Deputy Máire Devine asked the Minister for Health how the commitments in the National Rare Disease Strategy 2025-2030 and the 2026 IPHA Framework Agreement, particularly the 180-day decision timeline, are being applied to the case of patients with Friedrich's Ataxia to prevent further delay in addressing a clear unmet need for treatment and reimbursement. [22736/26]
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25 March 2026
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25 March 2026
Summary
368. Deputy Máire Devine asked the Minister for Health how the commitments in the National Rare Disease Strategy 2025-2030 and the 2026 IPHA Framework Agreement, particularly the 180-day decision timeline, are being applied to the case of patients with Friedrich's Ataxia to prevent further delay in addressing a clear unmet need for treatment and reimbursement. [22736/26]
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Health Strategies
Health Strategies
xml · EN · 25 March 2026
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- Official source: https://www.oireachtas.ie/en/debates/question/2026-03-25/368/
- Open data entity: https://data.oireachtas.ie/ie/oireachtas/question/2026-03-25/pq_368