PQ 3789
3789. Deputy Seán Crowe asked the Minister for Health to report on the way in which the National Rare Disease Strategy is being implemented to ensure timely access to innovative treatments for rare disease patients, including those with Phenylketonuria (PKU). [62911/26]
Introduced
7 September 2026
Last action
7 September 2026 · Clinical Trials
Status
written
Sponsors
Crowe, Seán.
Subjects
Discovery layer
Source updated
7 September 2026
Summary
3789. Deputy Seán Crowe asked the Minister for Health to report on the way in which the National Rare Disease Strategy is being implemented to ensure timely access to innovative treatments for rare disease patients, including those with Phenylketonuria (PKU). [62911/26]
This text is taken from the official record. PoliticalRepo does not editorialize.
Timeline
7 September 2026
Clinical Trials
3789. Deputy Seán Crowe asked the Minister for Health to report on the way in which the National Rare Disease Strategy is being implemented to ensure timely access to innovative treatments for rare disease patients, including those with Phenylketonuria (PKU). [62911/26]
Source: written
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Documents
1 official file
Clinical Trials
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Clinical Trials
xml · EN · 7 September 2026
Sponsors
- Crowe, Seán. · Asking member
- Health · Health · Addressed to
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Sources
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- Official source: https://www.oireachtas.ie/en/debates/question/2026-09-07/3789/
- Open data entity: https://data.oireachtas.ie/ie/oireachtas/question/2026-09-07/pq_3789
- ireland · q-2026-09-07-pq_3789 · source updated 7 September 2026