438. Deputy Richard O'Donoghue asked the Minister for Health the way in which the commitments in the National Rare Disease Strategy 2025-2030 and 2026 IPHA Framework Agreement which aims for 180-day decision timeline are being applied to this specific case, to prevent further delay in addressing the unmet need; and if she will make a statement on the matter. [23057/26]

Summary

438. Deputy Richard O'Donoghue asked the Minister for Health the way in which the commitments in the National Rare Disease Strategy 2025-2030 and 2026 IPHA Framework Agreement which aims for 180-day decision timeline are being applied to this specific case, to prevent further delay in addressing the unmet need; and if she will make a statement on the matter. [23057/26]

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• Disease Management

  xml · EN · 25 March 2026

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