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Ireland · Question · written

PQ 493

493. Deputy John Connolly asked the Minister for Health further to Parliamentary Question No. 1964 of 18 March 2026, relating to omaveloxolone skyclarys®, whether any interim arrangements are available or under consideration whereby, in circumstances where a family is willing to travel abroad, a patient could be facilitated in accessing this treatment while the drug remains under assessment by the HSE; whether the National Treatment Purchase Fund, or any other State mechanism, can be used to enable access to omaveloxolone (skyclarys®) in another jurisdiction pending completion of the assessment and reimbursement process; and if she will make a statement on the matter. [33553/26]

askedIreland· Dáil Éireann· EN

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7 May 2026

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7 May 2026

Summary

493. Deputy John Connolly asked the Minister for Health further to Parliamentary Question No. 1964 of 18 March 2026, relating to omaveloxolone skyclarys®, whether any interim arrangements are available or under consideration whereby, in circumstances where a family is willing to travel abroad, a patient could be facilitated in accessing this treatment while the drug remains under assessment by the HSE; whether the National Treatment Purchase Fund, or any other State mechanism, can be used to enable access to omaveloxolone (skyclarys®) in another jurisdiction pending completion of the assessment and reimbursement process; and if she will make a statement on the matter. [33553/26]

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