587. Deputy Ciarán Ahern asked the Minister for Health if her attention has been brought to Okur-Chung Syndrome, an ultra-rare genetic disorder caused by mutations in the CSNK2A1 gene which affects neurodevelopment, and of which there are seven cases in Ireland; if she is aware of any research into the disorder; if not, whether she will consider having such research commissioned; and if she will make a statement on the matter. [49659/25]

Summary

587. Deputy Ciarán Ahern asked the Minister for Health if her attention has been brought to Okur-Chung Syndrome, an ultra-rare genetic disorder caused by mutations in the CSNK2A1 gene which affects neurodevelopment, and of which there are seven cases in Ireland; if she is aware of any research into the disorder; if not, whether she will consider having such research commissioned; and if she will make a statement on the matter. [49659/25]

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