596. Deputy Pádraig O'Sullivan asked the Minister for Health whether a review has been undertaken of the needs of persons living with ultra-rare genetic disorders, including okur-chung syndrome; the measures in place to ensure timely access to diagnosis, specialist care, therapies and emerging treatments; and if she will make a statement on the matter. [70102/26]

Summary

596. Deputy Pádraig O'Sullivan asked the Minister for Health whether a review has been undertaken of the needs of persons living with ultra-rare genetic disorders, including okur-chung syndrome; the measures in place to ensure timely access to diagnosis, specialist care, therapies and emerging treatments; and if she will make a statement on the matter. [70102/26]

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Timeline

1. 6 October 2026

   Healthcare Policy

   596. Deputy Pádraig O'Sullivan asked the Minister for Health whether a review has been undertaken of the needs of persons living with ultra-rare genetic disorders, including okur-chung syndrome; the measures in place to ensure timely access to diagnosis, specialist care, therapies and emerging treatments; and if she will make a statement on the matter. [70102/26]

   Source: written

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• Healthcare Policy

  xml · EN · 6 October 2026

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• Pádraig O'Sullivan · Asking member
• Health · Health · Addressed to

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