672. Deputy Shay Brennan asked the Minister for Health if she is aware of concerns that some people living with Friedreich’s ataxia may face significant delays in accessing skyclarys (omaveloxolone) despite its reimbursement from 1 October 2026 (details supplied); the estimated timeframe within which all eligible patients will have commenced treatment; if additional resources will be provided to support treatment initiation and monitoring; the current waiting time for a Friedreich’s ataxia clinic appointment; and the measures being taken to address access to timely specialist review and annual multidisciplinary assessments. [70468/26]

Summary

672. Deputy Shay Brennan asked the Minister for Health if she is aware of concerns that some people living with Friedreich’s ataxia may face significant delays in accessing skyclarys (omaveloxolone) despite its reimbursement from 1 October 2026 (details supplied); the estimated timeframe within which all eligible patients will have commenced treatment; if additional resources will be provided to support treatment initiation and monitoring; the current waiting time for a Friedreich’s ataxia clinic appointment; and the measures being taken to address access to timely specialist review and annual multidisciplinary assessments. [70468/26]

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Timeline

1. 6 October 2026

   Medicinal Products

   672. Deputy Shay Brennan asked the Minister for Health if she is aware of concerns that some people living with Friedreich’s ataxia may face significant delays in accessing skyclarys (omaveloxolone) despite its reimbursement from 1 October 2026 (details supplied); the estimated timeframe within which all eligible patients will have commenced treatment; if additional resources will be provided to support treatment initiation and monitoring; the current waiting time for a Friedreich’s ataxia clinic appointment; and the measures being taken to address access to timely specialist review and annual multidisciplinary assessments. [70468/26]

   Source: written

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• Medicinal Products

  xml · EN · 6 October 2026

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• Shay Brennan · Asking member
• Health · Health · Addressed to

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