808. Deputy Aengus Ó Snodaigh asked the Minister for Health if his attention has been drawn to the situation of two children (details supplied) who have cystic fibrosis and are among 35 children between the ages of six to 11 years who are being denied access to the drug Kaftrio, which would greatly improve their lives; if his attention has been further drawn to the ongoing failure of the HSE to either engage with two named organisations or to make a decision to broaden access to the drug given that the lack of access is impeding on the quality of life of the 35 children affected; if he will intervene to bring about and facilitate engagement between the HSE and the two organisations as a matter of urgency; and if he will make a statement on the matter. [36017/22]

Summary

808. Deputy Aengus Ó Snodaigh asked the Minister for Health if his attention has been drawn to the situation of two children (details supplied) who have cystic fibrosis and are among 35 children between the ages of six to 11 years who are being denied access to the drug Kaftrio, which would greatly improve their lives; if his attention has been further drawn to the ongoing failure of the HSE to either engage with two named organisations or to make a decision to broaden access to the drug given that the lack of access is impeding on the quality of life of the 35 children affected; if he will intervene to bring about and facilitate engagement between the HSE and the two organisations as a matter of urgency; and if he will make a statement on the matter. [36017/22]

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