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Ireland · Question · written

PQ 838

838. Deputy Albert Dolan asked the Minister for Health whether she is satisfied that current reimbursement timelines for orphan medicines align with the commitments on timely and equitable access set out in the National Rare Disease Strategy 2025–2030; the measures that are being taken to address delays in cases where EMA-approved treatments, including those for Friedreich’s ataxia, remain unavailable to patients in Ireland; and if she will make a statement on the matter. [31882/26]

askedIreland· Dáil Éireann· EN

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6 May 2026

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6 May 2026

Summary

838. Deputy Albert Dolan asked the Minister for Health whether she is satisfied that current reimbursement timelines for orphan medicines align with the commitments on timely and equitable access set out in the National Rare Disease Strategy 2025–2030; the measures that are being taken to address delays in cases where EMA-approved treatments, including those for Friedreich’s ataxia, remain unavailable to patients in Ireland; and if she will make a statement on the matter. [31882/26]

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