PQ 871
871. Deputy Pádraig O'Sullivan asked the Minister for Health further to the estimate in the National Rare Disease Strategy 2025-2030 that 300,000 people in Ireland live with a rare disease, whether her Department or the Health Service Executive holds data on the breakdown of these conditions by disease or disease category; the status of the National Rare Disease Registry recommended in the Strategy; and if she will make a statement on the matter. [51876/26]
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7 July 2026
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7 July 2026
Summary
871. Deputy Pádraig O'Sullivan asked the Minister for Health further to the estimate in the National Rare Disease Strategy 2025-2030 that 300,000 people in Ireland live with a rare disease, whether her Department or the Health Service Executive holds data on the breakdown of these conditions by disease or disease category; the status of the National Rare Disease Registry recommended in the Strategy; and if she will make a statement on the matter. [51876/26]
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xml · EN · 7 July 2026
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- Official source: https://www.oireachtas.ie/en/debates/question/2026-07-07/871/
- Open data entity: https://data.oireachtas.ie/ie/oireachtas/question/2026-07-07/pq_871