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Ireland · Question · written

PQ 871

871. Deputy Pádraig O'Sullivan asked the Minister for Health further to the estimate in the National Rare Disease Strategy 2025-2030 that 300,000 people in Ireland live with a rare disease, whether her Department or the Health Service Executive holds data on the breakdown of these conditions by disease or disease category; the status of the National Rare Disease Registry recommended in the Strategy; and if she will make a statement on the matter. [51876/26]

askedIreland· Dáil Éireann· EN

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7 July 2026

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7 July 2026

Summary

871. Deputy Pádraig O'Sullivan asked the Minister for Health further to the estimate in the National Rare Disease Strategy 2025-2030 that 300,000 people in Ireland live with a rare disease, whether her Department or the Health Service Executive holds data on the breakdown of these conditions by disease or disease category; the status of the National Rare Disease Registry recommended in the Strategy; and if she will make a statement on the matter. [51876/26]

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