875. Deputy Albert Dolan asked the Minister for Health to provide an update on the implementation of spinal muscular atrophy (SMA) screening in the national newborn bloodspot heel-prick test, in view of the decision made in 2023 to include SMA in the programme alongside severe combined immunodeficiency; the reasons for the ongoing delay in its roll out despite the allocation of funding and the acknowledged urgency of early detection; and the timeframe for when SMA screening will be fully implemented to ensure that no child in Ireland is denied the opportunity for early diagnosis and treatment. [51504/25]

Summary

875. Deputy Albert Dolan asked the Minister for Health to provide an update on the implementation of spinal muscular atrophy (SMA) screening in the national newborn bloodspot heel-prick test, in view of the decision made in 2023 to include SMA in the programme alongside severe combined immunodeficiency; the reasons for the ongoing delay in its roll out despite the allocation of funding and the acknowledged urgency of early detection; and the timeframe for when SMA screening will be fully implemented to ensure that no child in Ireland is denied the opportunity for early diagnosis and treatment. [51504/25]

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