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Ireland · Question · written

PQ 942

942. Deputy Micheál Carrigy asked the Minister for Health if she will provide an update on the ongoing review of access to approved spinal muscular atrophy (SMA) treatments; if she is aware that approximately 20 adults continue to be excluded from treatment on the basis of having been over 18 years of age at the time of initial HSE approval; if she will outline the steps being taken to address this age-based exclusion and ensure fair and equal access to treatment for all patients living with SMA in Ireland; and if she will make a statement on the matter. [32831/25]

askedIreland· Dáil Éireann· EN

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17 June 2025

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17 June 2025

Summary

942. Deputy Micheál Carrigy asked the Minister for Health if she will provide an update on the ongoing review of access to approved spinal muscular atrophy (SMA) treatments; if she is aware that approximately 20 adults continue to be excluded from treatment on the basis of having been over 18 years of age at the time of initial HSE approval; if she will outline the steps being taken to address this age-based exclusion and ensure fair and equal access to treatment for all patients living with SMA in Ireland; and if she will make a statement on the matter. [32831/25]

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