CONTINUING EFFECTIVE DIAGNOSIS AND RESEARCH INTO EHLERS-DANLOS SYNDROME

Summary

That this House expresses utter sympathy with those who suffer from Ehlers-Danlos syndrome, a group of heritable disorders of connective tissue which can be profoundly disabling and life-threatening; recognises the distress that misdiagnosis over many years can cause; shares the hopes of thousands that research on gene mutations will ultimately lead to treatment; deplores the impending closure of Professor Mike Pope's MRC Connective Tissues Genetic Group at the Institute of Medical Genetics, Cardiff; and calls upon the Government to offer proper funding for this essential work as a matter of urgency.

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Timeline

1. 19 December 2000

   Early Day Motion

   That this House expresses utter sympathy with those who suffer from Ehlers-Danlos syndrome, a group of heritable disorders of connective tissue which can be profoundly disabling and life-threatening; recognises the distress that misdiagnosis over many years can cause; shares the hopes of thousands that research on gene mutations will ultimately lead to treatment; deplores the impending closure of Professor Mike Pope's MRC Connective Tissues Genetic Group at the Institute of Medical Genetics, Cardiff; and calls upon the Government to offer proper funding for this essential work as a matter of urgency.

   Source: Early Day Motion

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Sponsors

• Mr Hilton Dawson · Labour · Primary sponsor

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