United Kingdom · Question · Written question
HL HL4282
Rare Diseases
Introduced
1 May 2024
Last action
9 May 2024 · Answer
Status
Answered
Sponsors
—
Subjects
Discovery layer
Source updated
9 May 2024
Summary
To ask His Majesty's Government whether they intend to have any discussions with the National Institute for Health and Care Excellence (NICE) about continuing to work with the rare condition community to improve engagement and involvement in decision-maki
This text is taken from the official record. PoliticalRepo does not editorialize.
Timeline
1 May 2024
Written question
To ask His Majesty's Government whether they intend to have any discussions with the National Institute for Health and Care Excellence (NICE) about continuing to work with the rare condition community to improve engagement and involvement in decision-maki
Source: Lords
9 May 2024
Answer
Department officials regularly meet with colleagues in the National Institute for Health and Care Excellence (NICE) to discuss a range of issues. Taking into account the advice and experience of people using services, as well as their carers or advocates,...
Source: Written answer
Votes
No vote records are attached yet.
Versions
No version snapshots stored. Document URLs remain at the source.
Documents
No documents linked.
Sponsors
- · Department of Health and Social Care · Answering body
Related records
No cross-record relationships stored yet.
Sources
PoliticalRepo is an index and interpretation layer, not the authoritative legal source.
- Official source: https://questions-statements.parliament.uk/written-questions/detail/2024-05-01/HL4282
- Open data entity: https://questions-statements-api.parliament.uk/api/writtenquestions/questions/1715426
- uk · wq-1715426 · source updated 9 May 2024