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United Kingdom · Question · Written question

HL HL8691

Batten Disease: Medical Treatments

answeredUnited Kingdom· UK Parliament· EN

Introduced

23 June 2025

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Answered

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1 July 2025

Summary

To ask His Majesty's Government what estimate they have made of the number of children born annually in the UK with neuronal ceroid lipofuscinosis type 2 after January 2026, and what alternative treatments will be available should they be ineligible for t

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