United Kingdom · Question · Written question
UIN 108765
Rare Diseases: Medical Treatments
Original
Introduced
27 January 2026
Last action
3 February 2026 · Answer
Status
Answered
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Subjects
Discovery layer
Source updated
3 February 2026
Summary
To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the National Institute for Health and Care Excellence (NICE)'s current Highly Specialised Technologies Guidance, specifically where it does not recomm
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Timeline
27 January 2026
Written question
To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the National Institute for Health and Care Excellence (NICE)'s current Highly Specialised Technologies Guidance, specifically where it does not recomm
Source: Commons
3 February 2026
Answer
The National Institute for Health and Care Excellence (NICE) operates a separate Highly Specialised Technologies (HST) programme to evaluate a very small number of medicines and treatments developed for ultra‑rare, severe and life‑limiting conditions. It ...
Source: Written answer
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- · Department of Health and Social Care · Answering body
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- Official source: https://questions-statements.parliament.uk/written-questions/detail/2026-01-27/108765
- Open data entity: https://questions-statements-api.parliament.uk/api/writtenquestions/questions/1875729
- uk · wq-1875729 · source updated 3 February 2026