United Kingdom · Question · Written question
UIN 124565
Metachromatic Leukodystrophy: Children
Introduced
10 April 2026
Last action
29 April 2026 · Answer
Status
Answered
Sponsors
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Subjects
Discovery layer
Source updated
29 April 2026
Summary
To ask the Secretary of State for Health and Social Care, how many children have been diagnosed with metachromatic leukodystrophy since 2022; how many of those were diagnosed in time to receive NHS-commissioned treatment; and whether he has made an assess
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Timeline
10 April 2026
Written question
To ask the Secretary of State for Health and Social Care, how many children have been diagnosed with metachromatic leukodystrophy since 2022; how many of those were diagnosed in time to receive NHS-commissioned treatment; and whether he has made an assess
Source: Commons
29 April 2026
Answer
Last year, the 10-Year Health Plan was published following a national conversation to make the National Health Service work better for people.We know that significant unmet need remains for people living with rare diseases, and in February this year we pu...
Source: Written answer
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- · Department of Health and Social Care · Answering body
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Sources
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- Official source: https://questions-statements.parliament.uk/written-questions/detail/2026-04-10/124565
- Open data entity: https://questions-statements-api.parliament.uk/api/writtenquestions/questions/1896589
- uk · wq-1896589 · source updated 29 April 2026