United Kingdom · Question · Written question
UIN 1318
Epidermolysis Bullosa: Children
Original
Introduced
14 May 2026
Last action
26 May 2026 · Answer
Status
Answered
Sponsors
—
Subjects
Discovery layer
Source updated
26 May 2026
Summary
To ask the Secretary of State for Health and Social Care, what assessment he has made of the financial and logistical burdens on families of children with severe forms of epidermolysis bullosa who are required to travel long distances to EB Healthcare Cen
This text is taken from the official record. PoliticalRepo does not editorialize.
Timeline
14 May 2026
Written question
To ask the Secretary of State for Health and Social Care, what assessment he has made of the financial and logistical burdens on families of children with severe forms of epidermolysis bullosa who are required to travel long distances to EB Healthcare Cen
Source: Commons
26 May 2026
Answer
NHS England recognises that some children with severe forms of epidermolysis bullosa (EB) and their families may need to travel significant distances to access highly specialised care provided through nationally commissioned EB centres. The rarity and com...
Source: Written answer
Votes
No vote records are attached yet.
Versions
No version snapshots stored. Document URLs remain at the source.
Documents
No documents linked.
Sponsors
- · Department of Health and Social Care · Answering body
Related records
No cross-record relationships stored yet.
Sources
PoliticalRepo is an index and interpretation layer, not the authoritative legal source.
- Official source: https://questions-statements.parliament.uk/written-questions/detail/2026-05-14/1318
- Open data entity: https://questions-statements-api.parliament.uk/api/writtenquestions/questions/1905744
- uk · wq-1905744 · source updated 26 May 2026