United Kingdom · Question · Written question
UIN 19035
Batten Disease: Health Services
Introduced
15 June 2022
Last action
23 June 2022 · Answer
Status
Answered
Sponsors
—
Subjects
Discovery layer
Source updated
23 June 2022
Summary
To ask the Secretary of State for Health and Social Care, what recent assessment he has made of the adequacy of treatment for (a) adults and (b) children with Batten Disease.
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Timeline
15 June 2022
Written question
To ask the Secretary of State for Health and Social Care, what recent assessment he has made of the adequacy of treatment for (a) adults and (b) children with Batten Disease.
Source: Commons
23 June 2022
Answer
At present there are no licensed drugs for the treatment of Batten disease in adult patients. Following an evaluation by the National Institute for Health and Care Excellence (NICE) in 2019, enzyme replacement therapy for CLN2 or Batten disease is availab...
Source: Written answer
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- · Department of Health and Social Care · Answering body
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Sources
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- Official source: https://questions-statements.parliament.uk/written-questions/detail/2022-06-15/19035
- Open data entity: https://questions-statements-api.parliament.uk/api/writtenquestions/questions/1470812
- uk · wq-1470812 · source updated 23 June 2022