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United Kingdom · Question · Written question

UIN 190966

Orphan Drugs: Finance

answeredUnited Kingdom· UK Parliament· EN

Introduced

23 June 2023

Last action

29 June 2023 · Answer

Status

Answered

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Discovery layer

Source updated

29 June 2023

Summary

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of establishing a fund for ultra-orphan medicines.

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

  1. 23 June 2023

    Written question

    To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of establishing a fund for ultra-orphan medicines.

    Source: Commons

  2. 29 June 2023

    Answer

    The National Institute for Health and Care Excellence (NICE) has been able to recommend medicines for very rare diseases for NHS funding through its established processes. These are now available to NHS patients in England, including gene therapies for me...

    Source: Written answer

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