Phenylketonuria: Medical Treatments

Summary

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve patient access to new and emerging treatments for Phenylketonuria, including those available in other countries.

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Timeline

1. 18 May 2026

   Written question

   To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve patient access to new and emerging treatments for Phenylketonuria, including those available in other countries.

   Source: Commons

2. 22 May 2026

   Answer

   The Government recognises how important it is that patients with rare diseases can benefit from access to effective new medicines. The National Institute for Health and Care Excellence (NICE) makes recommendations for the National Health Service on whethe...

   Source: Written answer

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• · Department of Health and Social Care · Answering body

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