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United Kingdom · Question · Written question

UIN 24296

Thalassaemia

answeredUnited Kingdom· UK Parliament· EN

Introduced

29 June 2021

Last action

6 July 2021 · Answer

Status

Answered

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Discovery layer

Source updated

6 July 2021

Summary

To ask the Secretary of State for Health and Social Care, what steps he is taking to improve patient outcomes for people affected by transfusion dependent beta thalassemia.

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Timeline

  1. 29 June 2021

    Written question

    To ask the Secretary of State for Health and Social Care, what steps he is taking to improve patient outcomes for people affected by transfusion dependent beta thalassemia.

    Source: Commons

  2. 6 July 2021

    Answer

    We published the new United Kingdom Rare Diseases Framework in January 2021, outlining the key priorities for rare diseases including coordination of care and improved access to specialist care, treatments and drugs.In 2019, NHS England concluded a review...

    Source: Written answer

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