Diseases: Diagnosis and Medical Treatments

Summary

To ask the Secretary of State for Health and Social Care, what steps he is taking to improve (a) diagnosis and (b) treatment pathways for patients with (i) hypermobile Ehlers-Danlos Syndrome, (ii) Postural Orthostatic Tachycardia Syndrome and (iii) Mast C

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Timeline

1. 17 January 2025

   Written question

   To ask the Secretary of State for Health and Social Care, what steps he is taking to improve (a) diagnosis and (b) treatment pathways for patients with (i) hypermobile Ehlers-Danlos Syndrome, (ii) Postural Orthostatic Tachycardia Syndrome and (iii) Mast C

   Source: Commons

2. 23 January 2025

   Answer

   The Government is committed to improving the lives of those living with rare diseases, such as hypermobile Ehlers-Danlos syndrome (hEDS) and mast cell activation syndrome. The UK Rare Diseases Framework sets out four priorities, collaboratively developed ...

   Source: Written answer

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• · Department of Health and Social Care · Answering body

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