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United Kingdom · Question · Written question

UIN 5800

Metachromatic Leukodystrophy

answeredUnited Kingdom· UK Parliament· EN

Introduced

1 June 2026

Last action

1 July 2026 · Answer

Status

Answered

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Discovery layer

Source updated

1 July 2026

Summary

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of adding metachromatic leukodystrophy (MLD) to the NHS newborn blood spot screening programme.

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Timeline

  1. 1 June 2026

    Written question

    To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of adding metachromatic leukodystrophy (MLD) to the NHS newborn blood spot screening programme.

    Source: Commons

  2. 1 July 2026

    Answer

    Members of the UK National Screening Committee (UK NSC) have agreed that metachromatic leukodystrophy (MLD) would be a good candidate for the inclusion in a multi-condition in-service evaluation (ISE) within the United Kingdom’s newborn blood spot (NBS) s...

    Source: Written answer

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