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United Kingdom · Question · Written question

UIN 66030

Rare Diseases: Patients

Original

answeredUnited Kingdom· UK Parliament· EN

Introduced

29 June 2020

Last action

17 July 2020 · Answer

Status

Answered

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Discovery layer

Source updated

17 July 2020

Summary

To ask the Secretary of State for Health and Social Care, with reference to the UK strategy for rare diseases: implementation plan for England published on 29 January 2018, what progress the Government has made on working with providers to produce alert c

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Timeline

  1. 29 June 2020

    Written question

    To ask the Secretary of State for Health and Social Care, with reference to the UK strategy for rare diseases: implementation plan for England published on 29 January 2018, what progress the Government has made on working with providers to produce alert c

    Source: Commons

  2. 17 July 2020

    Answer

    In 2019, NHS England identified those specialised services in which patients with rare diseases are treated and asked the 150 providers that deliver these services to self-assess against three key criteria: care coordination; alert cards; and transition. ...

    Source: Written answer

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