Rare Diseases: Health Services

Summary

To ask the Secretary of State for Health and Social Care, if his Department will take steps with local Integrated Care Boards to help ensure that rare disease services are delivered according to the priorities set out in the Rare Disease Framework.

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Timeline

1. 11 October 2024

   Written question

   To ask the Secretary of State for Health and Social Care, if his Department will take steps with local Integrated Care Boards to help ensure that rare disease services are delivered according to the priorities set out in the Rare Disease Framework.

   Source: Commons

2. 21 October 2024

   Answer

   The UK Rare Diseases Framework sets a high-level strategy to focus action across the healthcare system to address the four priorities of: helping patients get a final diagnosis faster; increasing awareness of rare diseases among healthcare professionals; ...

   Source: Written answer

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• · Department of Health and Social Care · Answering body

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