Hereditary Diseases

Summary

To ask the Secretary of State for Health and Social Care, whether any NHS trusts (a) collect and (b) are required to collect data on (i) child and infant mortality, (ii) congenital anomalies and (iii) other health outcomes attributable to parental consang

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Timeline

1. 3 November 2025

   Written question

   To ask the Secretary of State for Health and Social Care, whether any NHS trusts (a) collect and (b) are required to collect data on (i) child and infant mortality, (ii) congenital anomalies and (iii) other health outcomes attributable to parental consang

   Source: Commons

2. 26 November 2025

   Answer

   The responsibility to collect and report child deaths is held by the commissioning authority and local authorities’ Child Death Overview Panels (CDOPs), not National Health Service trusts. The Child Death Review statutory guidance requires NHS trusts to p...

   Source: Written answer

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• · Department of Health and Social Care · Answering body

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