Neurofibromatosis

Summary

To ask the Secretary of State for Health and Social Care, whether his Department plans to develop standardised national guidelines for the (a) identification and (b) treatment of neurofibromatosis type 1 (NF1).

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Timeline

1. 14 October 2024

   Written question

   To ask the Secretary of State for Health and Social Care, whether his Department plans to develop standardised national guidelines for the (a) identification and (b) treatment of neurofibromatosis type 1 (NF1).

   Source: Commons

2. 21 October 2024

   Answer

   We remain committed to the UK Rare Diseases Framework, which highlights helping patients get a final diagnosis faster, and improved access to specialist care, treatment, and drugs as priorities to improve the lives of people with living with rare diseases...

   Source: Written answer

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• · Department of Health and Social Care · Answering body

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