Spinal Muscular Atrophy: Babies

Summary

To ask the Secretary of State for Health and Social Care, what his planned timeline is for the data collection, evaluation and interim decision for the in-service evaluation of newborn screening for spinal muscular atrophy.

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Timeline

1. 17 November 2025

   Written question

   To ask the Secretary of State for Health and Social Care, what his planned timeline is for the data collection, evaluation and interim decision for the in-service evaluation of newborn screening for spinal muscular atrophy.

   Source: Commons

2. 24 November 2025

   Answer

   On all aspects of population and targeted screening, Ministers are advised by the UK National Screening Committee (UK NSC).The UK NSC recommended an in-service evaluation (ISE) of newborn blood spot screening for spinal muscular atrophy (SMA) in National ...

   Source: Written answer

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• · Department of Health and Social Care · Answering body

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