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United Kingdom · Question · Written question

UIN 94912

Hereditary Diseases

answeredUnited Kingdom· UK Parliament· EN

Introduced

26 November 2025

Last action

2 December 2025 · Answer

Status

Answered

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Discovery layer

Source updated

2 December 2025

Summary

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 25 November 2025 to Question 87433 on Hereditary Diseases, which NHS trusts and other data providers are submitting incomplete information on parental consanguinity to the

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Timeline

  1. 26 November 2025

    Written question

    To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 25 November 2025 to Question 87433 on Hereditary Diseases, which NHS trusts and other data providers are submitting incomplete information on parental consanguinity to the

    Source: Commons

  2. 2 December 2025

    Answer

    Since assuming responsibility for the registration of congenital and rare conditions in 2015, the National Disease Registration Service (NDRS) has focused on improving the accuracy of case completeness and strengthening regional coverage to monitor trends...

    Source: Written answer

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