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United Kingdom · Question · Written question

UIN 98669

Ehlers-Danlos Syndrome: Waiting Lists

Original

answeredUnited Kingdom· UK Parliament· EN

Introduced

9 December 2025

Last action

7 January 2026 · Answer

Status

Answered

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Discovery layer

Source updated

7 January 2026

Summary

To ask the Secretary of State for Health and Social Care, what steps her Department is taking to reduce the time taken for (a) referrals and (b) assessments for Ehlers-Danlos syndrome.

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Timeline

  1. 9 December 2025

    Written question

    To ask the Secretary of State for Health and Social Care, what steps her Department is taking to reduce the time taken for (a) referrals and (b) assessments for Ehlers-Danlos syndrome.

    Source: Commons

  2. 7 January 2026

    Answer

    The Department recognises that Ehlers-Danlos syndromes (EDS) are complex, multi-systemic conditions that can be challenging to diagnose. While no formal assessment of average diagnosis times has been made, the Department is aware that many patients experi...

    Source: Written answer

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